tag:blogger.com,1999:blog-4732255176396931795.post7860992458211256130..comments2024-03-25T03:13:16.489-04:00Comments on BECAUSE I SAID SO: When Your Kid Is Afraid Her Heart Will ExplodeDawnhttp://www.blogger.com/profile/00465587872521082056noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-4732255176396931795.post-28398225245510226952018-03-05T22:25:46.590-05:002018-03-05T22:25:46.590-05:00I too have no faith in Florida doctors. My friend ...I too have no faith in Florida doctors. My friend 's niece had a stroke 42 years old. Docs said she was brain dead. Her husband refused to turn off life support, had to fight to get them to release her, flew her back home to Atlanta. The doctors there said her brain was still swollen from the stroke and they would wait and see. She woke up 2 weeks later and is 100% recovered now, about 4 Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4732255176396931795.post-24567874570303812612018-03-05T17:57:46.025-05:002018-03-05T17:57:46.025-05:00Just curious if she had a tilt table test for the ...Just curious if she had a tilt table test for the fainting and dizziness? My daughter doesn't have the fast heart rate but the other stuff she has experienced. She flunked the tilt table test (diagnosed with/vasovagal syncope) takes a beta blocker to stabilize her blood pressure which has helped with her BP problem. Will pray about this. You can't seem to catch a break. On the SherryAhttps://www.blogger.com/profile/11663199600560915339noreply@blogger.comtag:blogger.com,1999:blog-4732255176396931795.post-11157501280306207552018-03-05T15:01:26.306-05:002018-03-05T15:01:26.306-05:00Such a scary time for you and your daughter. I fo...Such a scary time for you and your daughter. I follow your family on facebook since forever. I know you are in Florida but there is a top-notch children's hospital that specializes in cardiology (Stead Children's Hospital) at the University of Iowa. I know you can't just afford to go there but maybe there is someone there you can begin communicating with electronically to see aboutTiffany Walternoreply@blogger.comtag:blogger.com,1999:blog-4732255176396931795.post-54240426491622826062018-03-05T10:03:46.450-05:002018-03-05T10:03:46.450-05:00My almost 20 year old daughter has POTS. It's ...My almost 20 year old daughter has POTS. It's a crazy condition. We found the most helpful doctor to be a pediatric neurologist. There is a Facebook group called POTSibilities Parents. A lot of good support but there are also a lot of desperate parents, so don't believe everything you read there. Bonnienoreply@blogger.comtag:blogger.com,1999:blog-4732255176396931795.post-61257541401436315282018-03-05T01:03:19.751-05:002018-03-05T01:03:19.751-05:00Is there a Children's Hospital you could take ...Is there a Children's Hospital you could take her to? There's one near me, if you want a second opinion. We have a guest room, when grown kids aren't staying in it.Suburban Correspondenthttps://www.blogger.com/profile/11488916572135296650noreply@blogger.comtag:blogger.com,1999:blog-4732255176396931795.post-63661760749392872682018-03-04T20:47:50.635-05:002018-03-04T20:47:50.635-05:00Always praying for you and your family every day. ...Always praying for you and your family every day. Will be praying even harder that you can figure out exactly what's going on and that the dr(s) is(are) trustworthy! It's so very hard if you can't trust the dr! Big hug!!!!!!!!!!!Lynnhttps://www.blogger.com/profile/01091076981043828400noreply@blogger.com